has normal you have been asleep .all suggle in tight you are sound alseep i also given you your feed has you been abit unsettle ,i also given you a big kiss and i telling you that we all love you
02.05
your dad and i came to visted you as you must have knew that we're here,they also haev boosted your feeds to 100ml ever 4 hours and you seem to tolerate it well ,dad end up laying you down ,you must have knew that he wasnt hold you anymore cause you where crying so instead i settle you down
03.05
on the way coming in there was an accident near wrarrgual road
turn off it took a while for traffic to move freely again, i had gotten lost arrivaling to you , has i took another way and it had taken me 4 hours to get to you , well i finally got to you i had given you a bath and you were weight, the ronald mcdonald called and said that there accomation avialable for me ,so stright away i went to get the keys and get the things so i can stay in the hospital,the room that i had gotten is room 1 , i pay $30 for the first night and $10 afterwards=$140 for 12 night but i have to be out by 12.05.06 , at lease i can be close to you and have your brother and sister with me also and to give you lots of hugs and kissescan't wait , we have soon much to catch up on , doctor said they might your operation in 4-6 weeks
04.05
you have been awake , so i decide to give you a bath weight and do your dressing, iam getting better in changing your gastromony tube dressing the more i do it the better i will get and easy it will get , i also had given your feed has you been a bit unstettle fot a little bit and then you as stettle you down again , erick had given you a big kiss , i wish you could come home ben cause we all miss you
05.05
i held you for while and had you stitting up has you explored your sounding , i had spoken to the surgen to find out what is the plan, joe crameri (surgen)and he said mid june as he not sure in the date yet , will have do a contast (barrmen)test to see how far for it is or how close it is, if the cap is to far apart he might have to do another way is to joint the stomach and the oestugus , (by pasting the lung ) he could also use the bottom of the stomach to make the tubing if the cap is too far , you had started cough with a lot of slivia that was at the back of your throat , i was scared but you came out of it okay ,
06.05
your 8 pound , after you where weight we gave you a bath !splash !splash! bang bang, and aftre your bath done your gastromony dressing i also had given you your feeds and given you a big cuddles
07.05
you have been well be have today smiling and taking to everyone, while you shake your beads and your dingle dangal shapes ,wow your so clever well done
08.05
nothing has really change since yesturday just the same routine we enjoyed everyday
*giving you heaps and loving cuddles
*bath time
*do your gastromony dressing
*enjoyed our specail time
we have to- gether , wow how much have you settle quite well we are so proud of you
09.05
the nurse had rang to see it was okay for to play with toys and listen to music , relaxing music is to help you relax and calm , i said yes , you enjoyed just laying happy and off to sleep
10.05
your where weight to-day , everyone said that your cute , has we knew this ,they has cahnge your repologe tubeand everyday you would smile more , we love you so much
11.05
the nurse had change your gastromony dressing and you are staring to play with more toys mum broug you some toy and a music box, you have been up most of the day to 10 pm . you finally went to sleep , good night sleep tight
12.05
******LION KING NIGHT **************
I given you a bath and change your gastromony dressing , you now fit in sizes 000 clothing which mean your growing , i then put you in your seat and in your cot and had your toy in your hand and then you had fell asleep ,
aunty paulette got to hold you , then we had to go and see the play call
" lion king", it was excellent play ,funny and you could feel the floor rumble, we both enjoyed ourself but i did think about you claire erick too wish we could have you here but has it was it was so hard to get the ticket, but once the show had finish i had came back to see you but you had been asleep , i tell you how it was tomorrow
13.05
i had put you in your seat and put the play gym in your cot , you had fell asleep while you where playing with the toys,
14.05
*******MOTHER'S DAYS*******
you had made mum a beauitful mother day card , your repolog tube had fallen out and need a lot of suction , i also held you for a while and i have taken claire and erick where playing , you fell asleep in you chair, your uncle norbert came to visted you also
15.05
you had been pretty good to-day . you didnt really need that much suction to-day, tomorrow ,i will give a bath and change your gastromomy dressing
16.05
came to see you to-day and gave you a bath and done your dressing , i getting a lot qiucker with it and erick has been helping to get the thing for me for you, i had also feed you and i put you in your chair erick is enjoying holding you
17.05 ********2 MONTHS OLD*******
they have move your feeds to 120ml your weight to-day 4.208 ,HAPPY 2 MONTH OLD , you get your immuations needles (it protect from disese ,) you been smiling a liitle bit more and your so beauiful , everyday, good night
i gave you a bath and you really enjoyed it playing and kicking in the water i also change your gastromony dressing , the surgeon said they will do your operation in two week , you have also been a bit unsettle to-day around 7 o'clock you had managed to fall asleep for the night , *you also had your two month needles to-day maybe that explain why your unsettle , ouch ! your so strong and brave
20.05
you have been pretty good today has you didnt need that much suction , i give you a bath torommow and cahge your dressing , well i have to go good noight littke man, you where weight 4lb 10oz and your smiling alot you are a beauitful boy
21.05
you feed are now gone to 130mls and you see to tolerated wel .dad came to see you and you look at dad like there was no torrommow father and son bond. i be giving you a bath and do your dressing , i have also put you in your chair and then you went to sleep , good night little man
22.05
gave you your favouitre past time and that you seem to love is your bath , we done the routine , change your dressing , joe carameri said that you do the barrmen contrast test on may 31st and mid june they mid think about doing your operation , it going to be producer, we are in for a very long ride, ben it no -one fault ,it just one of them thing happen and iam there for you , you pretty much went to sleep , good night sleep tight,
23.05
i gave you a bath and didnt do your dressing , you enjoyed your bath , to play theriapy vicki came and see you to-day to play with you had enjoyed it ,then you went to sleep , i held you and adore you , next wednesday they will do the barrmen study on you to see if how far it grown
24.05
**************** MUM BIRTHDAY *************
it your mum birthday , what a day i had phone call wishing me a happy birthday , you where up when i came to visted you so i put your muisical moblie and you be playing you been smilimg alot to , you are so beauitful ben , well i have to go to take erick as he wont stop playing with water ,and let you sleep tight , love you
*mum and aunty paulette have the same birthday onthis day, has we are twins, but we dont look a like
25.05
they change your gastromomy tube has it fell out , it fell out while the nurse was changing you, the doctor micheal knightgale replace it . this new tube doesnt need tapes and it will only take me lest then a mintes to clean around it, this new tube has a ballon at the end of it so it wont come out unit it pops the balloon life spans is 4 months, at lease you wont have tape marks on your belly, i enjoyed taking to has you respond to my voice
26.05
gave you a bath and you enjoyed it so much , i didnt have to worry about doing your gastromony tube and about tape i like this tube is a lot shorter thenthe brown tube you had before this tube is clear one, we can see the milk going throu,i gave you the biggest cuddle and enjoyed talking to you and you would talk back in your own little words, you then fell asleep, good night
27.05
i enjoyed bathing you you would splash around ,after getting you dress i gave you cuddles and kisses you al over ,you would talk and smile which is so cute and very comtemp baby i held you in m,y ducky dresing gown you fell asleep cudding in the dressing gown
********GOOD NIGHT,SLEEP TIGHT,DONT LET THE BED BUGS BITE *******CAUSE MUM HERE TO SAVE YOU ,
28.05
i gave you another bath , you splash aroundand kick around the water , wwe move you from the yelow cot cause the yellow cot side kept getting jam and hard to put the side down , so we put you in a sky blue cotand it got such a bit mattress, you seem to like it your new cot more , you fell asleep on my shoulder so i put you back in your cot , good night little man ,
29.05
the doctor/surgen said they will do the contast test on wednesday 31 mayi gave you a bath as you splash around, you had trouble with your repologe tube , you had 10 suction and that you have been spittingout thick silvia ,you had scare me , you also been very discomfty, i couldnt watch it , i held you for a while while their suction you nurse nicole, you has scare me but i knew you were okay ,
30.05
i gave you a bath , like usal you would kick around, you had fallen asleep after your bathand then you wroke up cause you need suction, the nurse had said you had been a bit weak and dusky , you couldnt breath lucky the doctors there doing their rounds,you must be getting sick of the repolgy tube in your mouth has the tube is there to help you stay alive , cant let you get sick your my baby boy and a strong one at that and that we all love you ,
31.05
you had your test to-day (contast) to see how much it may have grown ,it the same lenght from day one i saw the doctor who would do 
the producer which was discuss on 5.5.06, i got to push you inthe pram for the very first time , i felt so proud of pushing you and very happy , i really enjoyed it so much , i wanted to take you home but i couldnt cause you need suction and that i wasn't train in what to do, once your repair and over the hurdle, the next thing is to work in getting you home , i love you and you are a strong little boy who has made us do proud
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