BEN IS 8 MONTHS OLD
Ben has been doing good and still having dilation very two weeks all we wish to that we want him home for Christmas which is not far at all, ben is slowly rocking himself , the dietian have put ben on this milk which is call nurtini and it taste yuk, i dint know how Ben can put up with the taste but he putting on the weigth really well, , Ben is also starting to sit up really good without any aid, it great that even he was in hospital for 4-5 months and being confine to the bed and not have much room to move once he at home he caugth up with his development slowly but is getting there at his own paces
Tuesday, January 30, 2007
ben back in hospiatl
14.10
Ben is unwell
your back in the hospital l cause you had trouble breathing you had been taken in the ambulance with your brother and sister, their enjoyed has Claire was sitting in the front with the driver while the other took information from me, your oxygen haven't been that well what we have think that fluid have gone into your lung , so we where taken to the children hospital , the doctor had said if everything goes well you May be able to go home
,we then admitted and was put in 4 main room 2,
15.10
your oxygen stay in a good level all night we had to wait for Joe to see what the plan will be , Joe want to come back in a week for another dilation, he still gave us the okay to go home, so before we went home i went o neonatal until to show you and to see your process , and they couldn't get enougth of you on how much you have grown,
18.10
you had your dilation , and you had seem to be a bit unsettle , we didn't leave until 5.00pm has your oxygen kept dropping , you also started with your feed again, you seem to take it okay,
19.10
you have been a bit unsettle at home after your dilation you seen to be working a bit hard , then normal , it seem to be like this after your dilation , i think 3 days after you back to yourself again
28.10
you had been up since 3 am with a lot of cougthing and a lot of Silvia , so i rang Joe and told me to bring you in so we can get it done to-day, on the way there you had trouble with Silvia, it was so hard for me had i was driving and i couldn't stop so i look over and quickly wripe your mouth,, once i got there you where seen strigth away your dilation was around 2:00pm and everything went well, you had been really good
29.10.
we finally went home,
Ben is unwell
your back in the hospital l cause you had trouble breathing you had been taken in the ambulance with your brother and sister, their enjoyed has Claire was sitting in the front with the driver while the other took information from me, your oxygen haven't been that well what we have think that fluid have gone into your lung , so we where taken to the children hospital , the doctor had said if everything goes well you May be able to go home
,we then admitted and was put in 4 main room 2,
15.10
your oxygen stay in a good level all night we had to wait for Joe to see what the plan will be , Joe want to come back in a week for another dilation, he still gave us the okay to go home, so before we went home i went o neonatal until to show you and to see your process , and they couldn't get enougth of you on how much you have grown,
18.10
you had your dilation , and you had seem to be a bit unsettle , we didn't leave until 5.00pm has your oxygen kept dropping , you also started with your feed again, you seem to take it okay,
16.10
you roll over for the first time to-day , well done and that you have been making noise with you mouth (blowing)
Joe want us to come in on Wednesday for dilation ,
19.10
you have been a bit unsettle at home after your dilation you seen to be working a bit hard , then normal , it seem to be like this after your dilation , i think 3 days after you back to yourself again
28.10
you had been up since 3 am with a lot of cougthing and a lot of Silvia , so i rang Joe and told me to bring you in so we can get it done to-day, on the way there you had trouble with Silvia, it was so hard for me had i was driving and i couldn't stop so i look over and quickly wripe your mouth,, once i got there you where seen strigth away your dilation was around 2:00pm and everything went well, you had been really good
29.10.
we finally went home,
oops ! it went the wrong way :(
cond: from aug 31
1.09
dr michael whitgale said see how we go over the weekend and cross finger and everything goes well
2.09
nothing had change still have to wait to see how you would go , i brougth you ur first pair of sun classes you look very cute,in them
3.09
still no change still on i.v antibotic but good news the doctor are really impress with you process and that you are not getting any reflux,
4.09
at last going home wow but have to go back in a week for another duliation hopfully it goes well , we have aslo given you your first tase of soild food ,it was apple and mago and you seen to enjoyed it but when you first tase it the face you given was priceless, you had 7 teaspoonand you had seen to be a bit more settle
7.09
** OOPS IT WENT THE WRONG WAY***
You had enden back into the hospital, had you had trouble with food ,it all stared after i ahd given you food i waited 20-30 mintues to rub your back ,after you had trouble ,so i wnet to a shop in the dandenong plaza and i told them to call the sectuity and they call the albumance ,they came and you had another espoide on the way to the hospital , , once we had gotten there they had put a needle into your leg and had you where white has a chost they had to put 60ml of fluide , so the doctor call joe and we then tranfer to r,c,h for more on going treament, i think have i corage to feed you soild again, at the momnet i havent , i just didnt want to see you like that again , had it scared me , we had nearly lost you and i just bust into tear seeing you so white and life less, i dont think any mother would want to see their children in that state,
8.09
you had been abit unsettle , i had given you a wash down we started your gastromy feed again and that your legs are still a bit sore from the injection that you had in dandenongwe have given you panadol and that you antibolic have finish,
on a sad note
**holden team are have lost a great man who is peter brock ,he was kill in a car accent and he was age 61 he will truly miss, king of the mountain. one of mum and dad idol of car racing)
we went to 4 main around 2:30 am and we put in the same room that we gotten discharge from room 3 bed 1 , we are so exhausted we just want to sleep, good nigth sleep tigth
9.09
you had gotten an infection in your blood so they have given you amoxicticlin antibolic , dad came to stay with you and that he so happy with your process, once you saw your dad you had seem a lot happy
10.09
you got seen by a doctor at nigth which is unsual to see how your breathing is a bit hard and had given you some oxygen ,they migth be doing some test with you ,
11.09
they have taken you iv out cause you had kick the iv out so they out another one in , so tolerate it well, you are very comptemp ,the speech theop thime sam said that you are doing well and that we satrd your feed again,and to see how would you go,
12.09
to-day we are going home but we have to wait for joe to give the okay and to talk , the reaseon that you had been in hospital is that reflux had go into your lung, , i was happy to see you smile again , you had brigthen my day
17.09
****6 months old
happy 6 months old, you have made it yea, the first six month have been so tougth , we had to take you baCK TO THE R.C.H AGAIN HAD YOU HAD BENN HAVING ALOT OF SLIVIA, YOUR WEIGTH IS 6,2 KILO,, WOW,
18.09
we had such a busy morning 0.5.00am they put an i.v in your foot and try to give you antiboltic for no reason ahd there was no reason for the anitbolitic until they have founf a cause,torrow you be having another auliation , they have been sucting you to, if only some of the knew what they wher doing ,you they have also given you some oxygen and it had seem to help you settle
19.09
having a duliation this aftermoon you had seem to be a bit more settle then what you had did last nigth they have taken your i.v out has it was block other wise you had been settle , you need a little more oxygen until you have your dulaiton done,, your duliation went well ,and that you didnt have to stay in recovery room that long, soon after we had taken you back to 4 main,
20.09
we finally went home again, every one was happy with your process
22.09
appiontment with joe at 1:30 , and then a caridlogy at 1:15
27.09
you had appiomnet with joe again cause you had been cougthing a little bit to much , so hh had made another duliation for tommorrow,, so we had to admited you , what along day that we hope to have a good nigth
28.09you had your dulaituon well went but you had been a bit unsettle so their had given you some pandol and that you had slowly went to sleep , you had a good nigth sleep , i wish i could said the same for mum, , so that the duliation are weeklt at the monet so one is booked for next week
29.09
your oxygen level are a bit low , has you still in aid if suction , , but once we chaneyour prope you oxygen level went strigth to 100 percent, but still have a very little amount of oxygen,has you had been a bit unsettle you ere good otherwise
30.09
going home has you seen to be yourself once again, which is good to see,it was great to be home again
1.09
dr michael whitgale said see how we go over the weekend and cross finger and everything goes well
2.09
nothing had change still have to wait to see how you would go , i brougth you ur first pair of sun classes you look very cute,in them
3.09
still no change still on i.v antibotic but good news the doctor are really impress with you process and that you are not getting any reflux,
4.09
at last going home wow but have to go back in a week for another duliation hopfully it goes well , we have aslo given you your first tase of soild food ,it was apple and mago and you seen to enjoyed it but when you first tase it the face you given was priceless, you had 7 teaspoonand you had seen to be a bit more settle
7.09
** OOPS IT WENT THE WRONG WAY***
You had enden back into the hospital, had you had trouble with food ,it all stared after i ahd given you food i waited 20-30 mintues to rub your back ,after you had trouble ,so i wnet to a shop in the dandenong plaza and i told them to call the sectuity and they call the albumance ,they came and you had another espoide on the way to the hospital , , once we had gotten there they had put a needle into your leg and had you where white has a chost they had to put 60ml of fluide , so the doctor call joe and we then tranfer to r,c,h for more on going treament, i think have i corage to feed you soild again, at the momnet i havent , i just didnt want to see you like that again , had it scared me , we had nearly lost you and i just bust into tear seeing you so white and life less, i dont think any mother would want to see their children in that state,
8.09
you had been abit unsettle , i had given you a wash down we started your gastromy feed again and that your legs are still a bit sore from the injection that you had in dandenongwe have given you panadol and that you antibolic have finish,
on a sad note
**holden team are have lost a great man who is peter brock ,he was kill in a car accent and he was age 61 he will truly miss, king of the mountain. one of mum and dad idol of car racing)
we went to 4 main around 2:30 am and we put in the same room that we gotten discharge from room 3 bed 1 , we are so exhausted we just want to sleep, good nigth sleep tigth
9.09
you had gotten an infection in your blood so they have given you amoxicticlin antibolic , dad came to stay with you and that he so happy with your process, once you saw your dad you had seem a lot happy
10.09
you got seen by a doctor at nigth which is unsual to see how your breathing is a bit hard and had given you some oxygen ,they migth be doing some test with you ,
11.09
they have taken you iv out cause you had kick the iv out so they out another one in , so tolerate it well, you are very comptemp ,the speech theop thime sam said that you are doing well and that we satrd your feed again,and to see how would you go,
12.09
to-day we are going home but we have to wait for joe to give the okay and to talk , the reaseon that you had been in hospital is that reflux had go into your lung, , i was happy to see you smile again , you had brigthen my day
17.09
****6 months old
happy 6 months old, you have made it yea, the first six month have been so tougth , we had to take you baCK TO THE R.C.H AGAIN HAD YOU HAD BENN HAVING ALOT OF SLIVIA, YOUR WEIGTH IS 6,2 KILO,, WOW,
18.09
we had such a busy morning 0.5.00am they put an i.v in your foot and try to give you antiboltic for no reason ahd there was no reason for the anitbolitic until they have founf a cause,torrow you be having another auliation , they have been sucting you to, if only some of the knew what they wher doing ,you they have also given you some oxygen and it had seem to help you settle
19.09
having a duliation this aftermoon you had seem to be a bit more settle then what you had did last nigth they have taken your i.v out has it was block other wise you had been settle , you need a little more oxygen until you have your dulaiton done,, your duliation went well ,and that you didnt have to stay in recovery room that long, soon after we had taken you back to 4 main,
20.09
we finally went home again, every one was happy with your process
22.09
appiontment with joe at 1:30 , and then a caridlogy at 1:15
27.09
you had appiomnet with joe again cause you had been cougthing a little bit to much , so hh had made another duliation for tommorrow,, so we had to admited you , what along day that we hope to have a good nigth
28.09you had your dulaituon well went but you had been a bit unsettle so their had given you some pandol and that you had slowly went to sleep , you had a good nigth sleep , i wish i could said the same for mum, , so that the duliation are weeklt at the monet so one is booked for next week
29.09
your oxygen level are a bit low , has you still in aid if suction , , but once we chaneyour prope you oxygen level went strigth to 100 percent, but still have a very little amount of oxygen,has you had been a bit unsettle you ere good otherwise
30.09
going home has you seen to be yourself once again, which is good to see,it was great to be home again
first duliation after His 6 weeks big operation
1.08
you are now on full gastronomy feeds and tolerating it really well , you have also gotten a bit of a cold may be a settle back from getting you home, at lease we know what to expect when you have a cold, and you had been a bit dusky ,guess what you can do, you can suck your finger and hold your hands well done you clever boy
2.08
your feeds are now to 40mils per hours and you seem to take it well , you still got the cold and needed suction, cause of the cold you saturation keeps dropping , i hope you feel better tomorrow ,i get your feeding pump for home use and also your milk i have got a lot to do tomorrow for you when you come home,
3.08
it had been a busy day to-day , got your pump and i have been show how to used it, and i also have your feeds,and the thicker and your feeding lines we are all set.
4.08
gave you a bath and your feeds are now every 4 hours and tolerating it well , it maybe able to come home on Friday , cross figure nothing goes wrong +++++
your feeds are now 42mils but you had been a bit unsettle , i had taken you for another walk in the baby carrier but i had to shorten our trip cause you had Silvia and a lot of it, you had been asleep, so it was a chance to get to sleep to.
5.08
gave you a bath and we had weigth you to, your weigth to this day is 5.9 kilo wow so are gaining weigth so well , i gave you lots of cuddle to-day , and i am so good in getting ti know your pump , so now on i will have to your pump so i can do it at home
6.08
you have needed suction to-day , your family came to visited and we took you outside , you had been asleep while dad took you outside, has you enjoyed outside we had to soon take you back to 4 main, but you had been upset cause you didn't want to go back
7.08
you had received a barruimen (contrast test)to-day ,your behaviour have been good, dad came to visited also he had also came in to the room while the test is being done , you be behave so well while they where doing the test, i had put you on the floor while you enjoyed playing with your toys, guess what you having your picture taken for the nurser annual report, the nurser who the picture that you will be with is nurser ally, you haven't need any suction now, Cross fingers hope to go home soon
8.08
the test that you had done yesterday show that you had a stricture and tomorrow you be having your first duliation done, this dilation will properly be one of many,,i will so ask about you coming home this weekend , has this place is getting to depressing ,i am tried and exhausted and would like some answer fill,
9.08
you having you first ever dilation Thursday , Joe had said that if everything went well you be able to go home Monday , cross fingers, cause this will the first one that one to check you out to see how you would go afterwards,cause if every thing doesn't goes well it may actually set you back from getting home
10.08
sometime time to-day you be having your dilation , your temp is now 38.9 and it a bit high so i hope it doesn't set it back, so we have given you some panadol and hopefully it should settle down , finally it has arrival your going to have your dilation done, ,we had given you a kiss and off you went , after they done it Joe came and had spoken to us and said it had been very tigth and that they had to strecth to 4 cm , you will have to come in and have another dilation done in the near future, , so hopefully if all done and you should be able to get some much needed sleep
11.08
guess you haven't had no promble at all over nigth , to-day we will be trying oral feeding with you to see how well you be able to go on it, you had a bottle to-day , we had try both teat on you but you seen to like the normal teat , not the nuk teat and a slow flow teat, and you hadn't chuck it up which is good
12.08
you have a good day , you haven't chuck up which is good and you hadn't needed any suction we has also given you oral feeding at 3.00 and you had drank about 11 mils well done and we will try again at 5:oo and you had drank another 9 mils
13.08
you had drank 15ml at 1:00pm well done and another 3ml ant 3:00 you have been so well over the weekends so hopefully 2 morrow they can give us the green ligth tomrromow ,, cross finger
14.08
**** GOING HOME FINALLY *******
Finally going home about bloody time(lol) we didnt get out of the hospital until 2:00pm has we had to wait for Joe to give the okay . i had gotten you all dress for going home , we finally through it has been along wait and it had finally arrival , the chance to take you home,you, dad got to finally put you in your car seat , he didn't want me to put you in, so he did it, we went in Paulette car and first time ever for you , we had taken you thou the burnley tunnel, but you had fallen asleep, guess what we finally have you home
15.08
you had been up most of the night, you may have to get adjusted to the new sounding , from the hospital to your home, your sister Claire really cant believed that you are home , either can all of us, you had a visited from the hospital , the nurser came to check on how you are from the first nigth away from the hospital ,
16.08
i had show you off to our friends and family , and took you to Claire class room
27.08
we had to take back to the hospital had your breathing had became a bit wheezing and working a bit hard , i was worry and they had told me that you had gotten a virual infection and soon we where taken to the fifth floor, general medicine,
you where put on oxygen tube under your nose,
28.08
1:30 am we had arrival on the 5 the doctor came and said that your breathing is getting better , but with a viral infection it may take up to 1-2 week before showing any improvements at the moment it early days to know
29.08
we had finally went home
31.08
we had to be at the r.c.h by 7:00 for another dilation , while they where doing there was a bit of a leak so you had to stay again in hospital so we had to stop your feeds again and put on i.v , fluid you had a temp of 39 at one stage , so they manage to fix it
it has been such a busy month we finally got to take our baby home, and it been wonderful,it feel so good to have him home
you are now on full gastronomy feeds and tolerating it really well , you have also gotten a bit of a cold may be a settle back from getting you home, at lease we know what to expect when you have a cold, and you had been a bit dusky ,guess what you can do, you can suck your finger and hold your hands well done you clever boy
2.08
your feeds are now to 40mils per hours and you seem to take it well , you still got the cold and needed suction, cause of the cold you saturation keeps dropping , i hope you feel better tomorrow ,i get your feeding pump for home use and also your milk i have got a lot to do tomorrow for you when you come home,
3.08
it had been a busy day to-day , got your pump and i have been show how to used it, and i also have your feeds,and the thicker and your feeding lines we are all set.
4.08
gave you a bath and your feeds are now every 4 hours and tolerating it well , it maybe able to come home on Friday , cross figure nothing goes wrong +++++
your feeds are now 42mils but you had been a bit unsettle , i had taken you for another walk in the baby carrier but i had to shorten our trip cause you had Silvia and a lot of it, you had been asleep, so it was a chance to get to sleep to.
5.08
gave you a bath and we had weigth you to, your weigth to this day is 5.9 kilo wow so are gaining weigth so well , i gave you lots of cuddle to-day , and i am so good in getting ti know your pump , so now on i will have to your pump so i can do it at home
6.08
you have needed suction to-day , your family came to visited and we took you outside , you had been asleep while dad took you outside, has you enjoyed outside we had to soon take you back to 4 main, but you had been upset cause you didn't want to go back
7.08
you had received a barruimen (contrast test)to-day ,your behaviour have been good, dad came to visited also he had also came in to the room while the test is being done , you be behave so well while they where doing the test, i had put you on the floor while you enjoyed playing with your toys, guess what you having your picture taken for the nurser annual report, the nurser who the picture that you will be with is nurser ally, you haven't need any suction now, Cross fingers hope to go home soon
8.08
the test that you had done yesterday show that you had a stricture and tomorrow you be having your first duliation done, this dilation will properly be one of many,,i will so ask about you coming home this weekend , has this place is getting to depressing ,i am tried and exhausted and would like some answer fill,
9.08
you having you first ever dilation Thursday , Joe had said that if everything went well you be able to go home Monday , cross fingers, cause this will the first one that one to check you out to see how you would go afterwards,cause if every thing doesn't goes well it may actually set you back from getting home
10.08
sometime time to-day you be having your dilation , your temp is now 38.9 and it a bit high so i hope it doesn't set it back, so we have given you some panadol and hopefully it should settle down , finally it has arrival your going to have your dilation done, ,we had given you a kiss and off you went , after they done it Joe came and had spoken to us and said it had been very tigth and that they had to strecth to 4 cm , you will have to come in and have another dilation done in the near future, , so hopefully if all done and you should be able to get some much needed sleep
11.08
guess you haven't had no promble at all over nigth , to-day we will be trying oral feeding with you to see how well you be able to go on it, you had a bottle to-day , we had try both teat on you but you seen to like the normal teat , not the nuk teat and a slow flow teat, and you hadn't chuck it up which is good
12.08
you have a good day , you haven't chuck up which is good and you hadn't needed any suction we has also given you oral feeding at 3.00 and you had drank about 11 mils well done and we will try again at 5:oo and you had drank another 9 mils
13.08
you had drank 15ml at 1:00pm well done and another 3ml ant 3:00 you have been so well over the weekends so hopefully 2 morrow they can give us the green ligth tomrromow ,, cross finger
14.08
**** GOING HOME FINALLY *******
Finally going home about bloody time(lol) we didnt get out of the hospital until 2:00pm has we had to wait for Joe to give the okay . i had gotten you all dress for going home , we finally through it has been along wait and it had finally arrival , the chance to take you home,you, dad got to finally put you in your car seat , he didn't want me to put you in, so he did it, we went in Paulette car and first time ever for you , we had taken you thou the burnley tunnel, but you had fallen asleep, guess what we finally have you home
15.08
you had been up most of the night, you may have to get adjusted to the new sounding , from the hospital to your home, your sister Claire really cant believed that you are home , either can all of us, you had a visited from the hospital , the nurser came to check on how you are from the first nigth away from the hospital ,
16.08
i had show you off to our friends and family , and took you to Claire class room
27.08
we had to take back to the hospital had your breathing had became a bit wheezing and working a bit hard , i was worry and they had told me that you had gotten a virual infection and soon we where taken to the fifth floor, general medicine,
you where put on oxygen tube under your nose,
28.08
1:30 am we had arrival on the 5 the doctor came and said that your breathing is getting better , but with a viral infection it may take up to 1-2 week before showing any improvements at the moment it early days to know
29.08
we had finally went home
31.08
we had to be at the r.c.h by 7:00 for another dilation , while they where doing there was a bit of a leak so you had to stay again in hospital so we had to stop your feeds again and put on i.v , fluid you had a temp of 39 at one stage , so they manage to fix it
it has been such a busy month we finally got to take our baby home, and it been wonderful,it feel so good to have him home
good bye neonatal. hello 4 main
1.07
you have started to move has you get comfable , but your heart rate had seem to drop it had drop when they had suction you the nurse had also given you a wash down , soon we b be able to hold you and bath, feed you , time will only tell ,
2.07
they have reducing your I.V medication down and your vendutior , your are slowy moving but your are still fast asleep
3.07
they endup pulling your vendoutor tube from the nurse , so the doctors wanted to see how you would have gone, your tempature had go up to 38 degree , it had seem that you had gotten an infection where the i.v was in your neck so their had taken out of your neck and had out in your head, ouch !
4.07
you still out of it fast asleep but you are aleart, you are too big for your bed , the nurse had given you a wash down ,i sat beside your bed reading a book , you are starting to have poos and wee normaly , which is great news, they have also started to lower you medication but your temp is 38 degree , , keep up the great work ben well done
5.07
your temp seem to be okay now, you have also been opening your eyes and smilimg , you have been up most of the day , so they have been giving a drug to help you sleep , cause you will nedd to heal from from your opeartion, you are also seem to breath on your slowy which is great news, you are inproving everyday, well doneyou are off the drug katamine but you are still on morphine is niw 24mls it was 48mls , i let you sleep good nigth , it has been aweek since you had your operation,
6.07 se your face again, keep up the wondergful work
8.07
i saw you and you where so happy that you cry and the venatuor had stop you from crying, it made me cry to not hear you cry , after 8 day i finally got to change your nappy and i was happy to do that tomorrow they are thinkg about taking the ventuotor and medication off cause you are doing so well, they are slowlying staring your gastromomy feeds ,
7.07
you now can breath on your own wothout any aid of a madcince,and the morphine is also take off to, guess what i finally got to hold you after a 9 days , and i am enjoyeing it so much, you are slowy getting your voice back we have slowly move from the bed in to a cot,we also put some clothes and starte to feed you throu your tube , i even got to see your whole face , i nearly cry
they have move from room 3 back to room 2 , you are soing so well and seem to take it well and giving you something for you to help you sleep, good night
9.07 ****what a day to turn BLUE****
their have started to boost your feed to 20ml and seem to take it okay, they wanted to see how would you go later on and they might boost to 40mls but you didnt tolerate you went blue and they gave you some oxgen , dad when out of the room cause he couldnt take it, it was too much for him, at 5:00pm you had trouble again so their had stop your feed until futrue notice , we also got you sucking on your dummy again, all i can said what aday
10.07
their have change your i.v lines cause your head swell you had another barmen test to see if there any leaks , after the test was done you starte to go BLUE , i never seen so many nurse and doctors run to your aid , after getting you better with oxgen we took you back to nnu , you had been the talk of the ward,so they had to stop your feed again until we cant figuer our what to do, until they put a nasla gastic tube and to start your feed once again until . they have put a special feed throu your i.v call (TDM) It help replace what you have miss with the milk,
you really scared us all , but you are now safe, thanks god
11.07
they had to put another i.v into your armas it wasnt working well (the tissue tend to block and it couse swell ,)i got to put you to sleep and after that you finally slept , i will give you a ash to-morrow, and also but a nasl gastic tube in to,we also enjoyed reading and laugthing to-gether
12.07
your aunty brooke and cousin emma came to see you , they had a appioment in the city tomorrow so they stay with me , so has also put another i.v in your foot and they had insert the nasla gastic tube in, after it was done you .your colour had turn a bit dusky so they had given you some oxgen, they where thinking about giving a cgap,nasal prong that oxgen travel throu,
13.07
they had put another i.v into your arm, but it had tissue and as cause the needle to stop working,so they had to take it out and tried again , you had been crying , i dont blame you not one bit, it was horriable they had been trying fro 30 mintes trying to get a vain, and here is my baby boy crying cause it hurting him, so i told them to stop it and try to slowy feed him , and thicken feed, befored hand his feeds wasnt thicken and cause him to go blue,so to start him feeds to 10mls and slowly take it up,
14,06
your feed are now from 10-20mls into your nasla gastic tubeand seem to tolerating really well,i had also given you a bath , keep up the great work ben well done
15,07
the nurse had given you bath to-day and a massard you really enjoyed it,your feed are now 23mls and you are taken it really well , we are proud ;
condutious feeds very hour,
16.07
your feeds are now 34mls still very hour and you seem to be taking it very well you have been very cheeky but ringing your bells and then you have gotten bore , i dont blame you , staying in that bed all day and every day ,apparently you had pull your gastromy tube out so they had to put another tube in, cheeky little man,
17.07*****4 moths old*****
you are still condutious feeds into the nasla gastic tube, you fell asleep on your chest and when i put you back in your bed you had wroken up,i broug you a colorful moblie for you cot, it had pretty toys and music too,and ligths up.
18.07 ****** FINALLY OUR 1ST TRIP OUTSIDE*******
i had given you a bath to-day and we change your bed and i was allow to take you out for the very frist time every out side, so i wanted to take you out for you frist taste of fresh air , and like i expected it you where a bit shock from the cold air,after that i had taken you to the starligth room ,you had fallen asleep in the pram, it felt so good to take you out,your weigth is now 5.6kg well done in keeping your weigth on
19.07
apparentaly you had one of them day where you had been unsettel so they call me to help you settled down , once i arrival and held you you seem to fall asleep, i also took you for another walk out of the room to help you more settle, it work you went to sleep , i put you back in your bed and i went back to get some shut eye has i been so tried and i will see you tomorrow, i do love you very much ben
20.07*****YOU HAVE MOVE UP IN THE WARD***
you had a bath to-day they have decide to move to to a diffenrt ward (4 main) which is on the fourth floor in the hospital,the reason they have move you cause you have gotten you big for them ,and you where well enought to be move to a diffent part of the hospital,you had also you 4 months injection befored moving to 4 main, what a big move , guess what i get to sleep beside you , they have fold up chairs there, i will soon give up the room and stay beside you, , i will feel like a mum again sleeping beside you.
21.07
gave you a wash down you didnt like it , dad was so proud to be pushing you he didnt allow me to push you you had really enjoyed it, i really loving these monet that we have
22.07
gave you a bath to-day we are both slowy getting used to the fourth floor and that we are going to a lot of places,dad came to visted us and put you in the pram,
has there are t,v(television) you have been drawn to the t.v , another who just love the t,v
23.07
your feed are still 35mls we had also change your dressing and you had been a bit unsettel so i took you for a walk to help you settle , claire and erick help push the pram and you fell asleep and i slep beside you
24.07
i ask the doctor what is the plan
*plan for home
*oral feeding
*gastromy dressing
we will havee to wait to see how he is later on
25.07*****BEN First TASTE OF A BOTTLE****
what a step of oral feeding your frist taste of a bottle , you seem to love it you couldnt wait to take it , you had also an hearing test and needed for you to sleep , the doctor will put a bigger tube in and soon start your feeds throu it, your friend johannah had her operation to-day , hope everything goes well,
26.07
they inserted another tube in , you had to go to therated to-day , i cry alittle cause you wnet to sleep with the gas, but i knew that you where fine, tomorrow they will start your feeding , throu the tube so hopfull it will go well, and well all know this , you have gone this far no backing down now,, you are so strong that you have achive so much in your little life ,they are talking about you going home with full gastromony feed
27.07 ***DADDY BIRTHDAY AND CLAIRE SCHOOL PLAY**
happy birthday dad , they have started our feed in the tube and you seem to tolerating it well, it milk is thicken and ,the gastromy feed are 3mls and the nasal tube is till 33ml their will up the gastromy feed and lower the nasal gastic tube feeds and soon you be on full gastromony feeds, and the nasla tube will be gone foreverbut your feeds are still every hour, claire had her frist glass school perform "mr henley garden" she was very cute, i didnt ask the doctor to see if i can take you with us, but if you have troulbe i will ahve to rush you strigth back and i didnt have any traing so i was safe just to leave you where you are,
28.07
your feed are 33mls every 4 hours , and the gastromy feed are now 10mls and the nasla tube is 23 not long now it will be gone , the doctor are so happy with your process we will ahve to wait until monday to find out more,
29.07
your nasal tube is now 17mls and the gasromy is 15 mils their are boosting 1ml every two hoursand you seem to be tolearting well , well done ben , keep up the great work
30.07
your feeds are now 25mls in the gastromony tube and the nasal gastic tube you are seen to tolerating it well,the nurse had taken to the front desk cause you wanted to be out of your cot,
you have started to move has you get comfable , but your heart rate had seem to drop it had drop when they had suction you the nurse had also given you a wash down , soon we b be able to hold you and bath, feed you , time will only tell ,
2.07
they have reducing your I.V medication down and your vendutior , your are slowy moving but your are still fast asleep
3.07
they endup pulling your vendoutor tube from the nurse , so the doctors wanted to see how you would have gone, your tempature had go up to 38 degree , it had seem that you had gotten an infection where the i.v was in your neck so their had taken out of your neck and had out in your head, ouch !
4.07
you still out of it fast asleep but you are aleart, you are too big for your bed , the nurse had given you a wash down ,i sat beside your bed reading a book , you are starting to have poos and wee normaly , which is great news, they have also started to lower you medication but your temp is 38 degree , , keep up the great work ben well done
5.07
your temp seem to be okay now, you have also been opening your eyes and smilimg , you have been up most of the day , so they have been giving a drug to help you sleep , cause you will nedd to heal from from your opeartion, you are also seem to breath on your slowy which is great news, you are inproving everyday, well doneyou are off the drug katamine but you are still on morphine is niw 24mls it was 48mls , i let you sleep good nigth , it has been aweek since you had your operation,
6.07 se your face again, keep up the wondergful work
8.07
i saw you and you where so happy that you cry and the venatuor had stop you from crying, it made me cry to not hear you cry , after 8 day i finally got to change your nappy and i was happy to do that tomorrow they are thinkg about taking the ventuotor and medication off cause you are doing so well, they are slowlying staring your gastromomy feeds ,
7.07
you now can breath on your own wothout any aid of a madcince,and the morphine is also take off to, guess what i finally got to hold you after a 9 days , and i am enjoyeing it so much, you are slowy getting your voice back we have slowly move from the bed in to a cot,we also put some clothes and starte to feed you throu your tube , i even got to see your whole face , i nearly cry
they have move from room 3 back to room 2 , you are soing so well and seem to take it well and giving you something for you to help you sleep, good night
9.07 ****what a day to turn BLUE****
their have started to boost your feed to 20ml and seem to take it okay, they wanted to see how would you go later on and they might boost to 40mls but you didnt tolerate you went blue and they gave you some oxgen , dad when out of the room cause he couldnt take it, it was too much for him, at 5:00pm you had trouble again so their had stop your feed until futrue notice , we also got you sucking on your dummy again, all i can said what aday
10.07
their have change your i.v lines cause your head swell you had another barmen test to see if there any leaks , after the test was done you starte to go BLUE , i never seen so many nurse and doctors run to your aid , after getting you better with oxgen we took you back to nnu , you had been the talk of the ward,so they had to stop your feed again until we cant figuer our what to do, until they put a nasla gastic tube and to start your feed once again until . they have put a special feed throu your i.v call (TDM) It help replace what you have miss with the milk,
you really scared us all , but you are now safe, thanks god
11.07
they had to put another i.v into your armas it wasnt working well (the tissue tend to block and it couse swell ,)i got to put you to sleep and after that you finally slept , i will give you a ash to-morrow, and also but a nasl gastic tube in to,we also enjoyed reading and laugthing to-gether
12.07
your aunty brooke and cousin emma came to see you , they had a appioment in the city tomorrow so they stay with me , so has also put another i.v in your foot and they had insert the nasla gastic tube in, after it was done you .your colour had turn a bit dusky so they had given you some oxgen, they where thinking about giving a cgap,nasal prong that oxgen travel throu,
13.07
they had put another i.v into your arm, but it had tissue and as cause the needle to stop working,so they had to take it out and tried again , you had been crying , i dont blame you not one bit, it was horriable they had been trying fro 30 mintes trying to get a vain, and here is my baby boy crying cause it hurting him, so i told them to stop it and try to slowy feed him , and thicken feed, befored hand his feeds wasnt thicken and cause him to go blue,so to start him feeds to 10mls and slowly take it up,
14,06
your feed are now from 10-20mls into your nasla gastic tubeand seem to tolerating really well,i had also given you a bath , keep up the great work ben well done
15,07
the nurse had given you bath to-day and a massard you really enjoyed it,your feed are now 23mls and you are taken it really well , we are proud ;
condutious feeds very hour,
16.07
your feeds are now 34mls still very hour and you seem to be taking it very well you have been very cheeky but ringing your bells and then you have gotten bore , i dont blame you , staying in that bed all day and every day ,apparently you had pull your gastromy tube out so they had to put another tube in, cheeky little man,
17.07*****4 moths old*****
you are still condutious feeds into the nasla gastic tube, you fell asleep on your chest and when i put you back in your bed you had wroken up,i broug you a colorful moblie for you cot, it had pretty toys and music too,and ligths up.
18.07 ****** FINALLY OUR 1ST TRIP OUTSIDE*******
i had given you a bath to-day and we change your bed and i was allow to take you out for the very frist time every out side, so i wanted to take you out for you frist taste of fresh air , and like i expected it you where a bit shock from the cold air,after that i had taken you to the starligth room ,you had fallen asleep in the pram, it felt so good to take you out,your weigth is now 5.6kg well done in keeping your weigth on
19.07
apparentaly you had one of them day where you had been unsettel so they call me to help you settled down , once i arrival and held you you seem to fall asleep, i also took you for another walk out of the room to help you more settle, it work you went to sleep , i put you back in your bed and i went back to get some shut eye has i been so tried and i will see you tomorrow, i do love you very much ben
20.07*****YOU HAVE MOVE UP IN THE WARD***
you had a bath to-day they have decide to move to to a diffenrt ward (4 main) which is on the fourth floor in the hospital,the reason they have move you cause you have gotten you big for them ,and you where well enought to be move to a diffent part of the hospital,you had also you 4 months injection befored moving to 4 main, what a big move , guess what i get to sleep beside you , they have fold up chairs there, i will soon give up the room and stay beside you, , i will feel like a mum again sleeping beside you.
21.07
gave you a wash down you didnt like it , dad was so proud to be pushing you he didnt allow me to push you you had really enjoyed it, i really loving these monet that we have
22.07
gave you a bath to-day we are both slowy getting used to the fourth floor and that we are going to a lot of places,dad came to visted us and put you in the pram,
has there are t,v(television) you have been drawn to the t.v , another who just love the t,v
23.07
your feed are still 35mls we had also change your dressing and you had been a bit unsettel so i took you for a walk to help you settle , claire and erick help push the pram and you fell asleep and i slep beside you
24.07
i ask the doctor what is the plan
*plan for home
*oral feeding
*gastromy dressing
we will havee to wait to see how he is later on
25.07*****BEN First TASTE OF A BOTTLE****
what a step of oral feeding your frist taste of a bottle , you seem to love it you couldnt wait to take it , you had also an hearing test and needed for you to sleep , the doctor will put a bigger tube in and soon start your feeds throu it, your friend johannah had her operation to-day , hope everything goes well,
26.07
they inserted another tube in , you had to go to therated to-day , i cry alittle cause you wnet to sleep with the gas, but i knew that you where fine, tomorrow they will start your feeding , throu the tube so hopfull it will go well, and well all know this , you have gone this far no backing down now,, you are so strong that you have achive so much in your little life ,they are talking about you going home with full gastromony feed
27.07 ***DADDY BIRTHDAY AND CLAIRE SCHOOL PLAY**
happy birthday dad , they have started our feed in the tube and you seem to tolerating it well, it milk is thicken and ,the gastromy feed are 3mls and the nasal tube is till 33ml their will up the gastromy feed and lower the nasal gastic tube feeds and soon you be on full gastromony feeds, and the nasla tube will be gone foreverbut your feeds are still every hour, claire had her frist glass school perform "mr henley garden" she was very cute, i didnt ask the doctor to see if i can take you with us, but if you have troulbe i will ahve to rush you strigth back and i didnt have any traing so i was safe just to leave you where you are,
28.07
your feed are 33mls every 4 hours , and the gastromy feed are now 10mls and the nasla tube is 23 not long now it will be gone , the doctor are so happy with your process we will ahve to wait until monday to find out more,
29.07
your nasal tube is now 17mls and the gasromy is 15 mils their are boosting 1ml every two hoursand you seem to be tolearting well , well done ben , keep up the great work
30.07
your feeds are now 25mls in the gastromony tube and the nasal gastic tube you are seen to tolerating it well,the nurse had taken to the front desk cause you wanted to be out of your cot,
Saturday, January 13, 2007
good and quite month
*********happy new year
01.01
ben first new was spend at home has it was hot and that he had slept most of the day
02.01
great new gen is drinking orally he drank about 60ml and he sem to enjoted it well done
03.01
ben once again drank from his bottle again, so within every hours he manage to drink about 50ml the most he drank is about 150ml
09.01
ben is trying to crawl he is trying to get his balance up , but he slowly scooting backward is easy for him to get by
11.01
ben a adulaition to-dau , he seem to be okay after having it done , he seem be back to him self again , like nothing has happen
25.01
ben had had another duliation , and have his gastromony replace has he has been crwling back ward and getting caught under his legs, beford theor could the dulaion their had a x-ray and founf a metal object inbeded in his throat , after their done it the surgen had came back and shpwn us a $2 dollars coin with was in his thorat and corn, all i could think was how did he mangde to get the money down his throat, he is a lucky little boy,, tehir had also replace his tube to a mikey buttom , this one is a bit better and easy to detaceh , for when his crawls, it had been a busy day
27,01
ben had now graduate from crwling backward to now forward, well done, must now watch where he crawls
01.01
ben first new was spend at home has it was hot and that he had slept most of the day
02.01
great new gen is drinking orally he drank about 60ml and he sem to enjoted it well done
03.01
ben once again drank from his bottle again, so within every hours he manage to drink about 50ml the most he drank is about 150ml
09.01
ben is trying to crawl he is trying to get his balance up , but he slowly scooting backward is easy for him to get by
11.01
ben a adulaition to-dau , he seem to be okay after having it done , he seem be back to him self again , like nothing has happen
25.01
ben had had another duliation , and have his gastromony replace has he has been crwling back ward and getting caught under his legs, beford theor could the dulaion their had a x-ray and founf a metal object inbeded in his throat , after their done it the surgen had came back and shpwn us a $2 dollars coin with was in his thorat and corn, all i could think was how did he mangde to get the money down his throat, he is a lucky little boy,, tehir had also replace his tube to a mikey buttom , this one is a bit better and easy to detaceh , for when his crawls, it had been a busy day
27,01
ben had now graduate from crwling backward to now forward, well done, must now watch where he crawls
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