BEN IS NOW 13 MONTHS OLD
what a month well let see what Ben has been up to this month. Ben has been very cheeky clever and doesn't stop getting into things Ben has also been standing up against furniture but lately Ben has been getting up in the middle of the early morning and been crying wanting to get out of his cot and once we put in in our bed he seem to be asleep again,
he seem to enjoyed the big bed then his cot i don't blame him, being cramp in his cot his cot isn't enough room,
he has also been crawling more and fast and still having his dilation still every two weeks , Ben is now 13 months and wow is has gone so quick,
Ben enjoyed his second Easter away from the hospital cause last time he spend Easter in the hospital . Ben is now huge he weigth is 9.5 kilo and length is 76cm . well done,
on the 2ND of April we met also another parent who had a tof/oa who was only 3 months this baby had a short gap, and i exchange some point and help to the rigth people who can help with them with the support, it was very nice to know that we can help then too,
!!!!WHAT A BUSY DAY FOR POOR LITTLE MAN .
this moring we had to go the children hospital for another dilation we had gotten there late because of road work that they are working in near officer for the east link road works, , because of the work he had to be done second ,after he was done he had to have one more 12 month injection (mmr) mersel,mumps,rubella) and after waiting 15 minutes and i then took Ben to his hearing appointment it turn out that Ben had fluid in the middle ear so we couldn't finishing the test as Ben had fallen asleep and we need him to be awake for the test so we then re booked the appointment, what a busy day for Ben
Ben had also been standing more on his own we think it wont be long before he take his first step,
we had also bougth Ben a bag for his pump . it perfect it fit nicely on him and but he slowly trying to get used it , we hope he doesn't get a swore back from it,
******DAM BACK IN HOSPITAL , **********:( :(
as Easter as been and gone we started to notice that Ben started to cough up Silvia more then normal . all we can think is i hope he hasn't swollen something, which is so hard to tell if it stricture or swollen, so we had taken him down to the hospital and then he was admited, good news it wasn't a stricture it look like that he did swollen some foil , grrrrrr,
he now weigth is 9.8 kilo , and his feeds are now 55mils an hour and tolerating it really well well done Ben
**** it finally arrival after a month **
after a month long waiting Ben medic alert bracelet finally came, wow ! it will be easy to tell people about Ben condition and people can look at his bracelet to
what a month well let see what Ben has been up to this month. Ben has been very cheeky clever and doesn't stop getting into things Ben has also been standing up against furniture but lately Ben has been getting up in the middle of the early morning and been crying wanting to get out of his cot and once we put in in our bed he seem to be asleep again,
he seem to enjoyed the big bed then his cot i don't blame him, being cramp in his cot his cot isn't enough room,
he has also been crawling more and fast and still having his dilation still every two weeks , Ben is now 13 months and wow is has gone so quick,
Ben enjoyed his second Easter away from the hospital cause last time he spend Easter in the hospital . Ben is now huge he weigth is 9.5 kilo and length is 76cm . well done,
on the 2ND of April we met also another parent who had a tof/oa who was only 3 months this baby had a short gap, and i exchange some point and help to the rigth people who can help with them with the support, it was very nice to know that we can help then too,
!!!!WHAT A BUSY DAY FOR POOR LITTLE MAN .
this moring we had to go the children hospital for another dilation we had gotten there late because of road work that they are working in near officer for the east link road works, , because of the work he had to be done second ,after he was done he had to have one more 12 month injection (mmr) mersel,mumps,rubella) and after waiting 15 minutes and i then took Ben to his hearing appointment it turn out that Ben had fluid in the middle ear so we couldn't finishing the test as Ben had fallen asleep and we need him to be awake for the test so we then re booked the appointment, what a busy day for Ben
Ben had also been standing more on his own we think it wont be long before he take his first step,
we had also bougth Ben a bag for his pump . it perfect it fit nicely on him and but he slowly trying to get used it , we hope he doesn't get a swore back from it,
******DAM BACK IN HOSPITAL , **********:( :(
as Easter as been and gone we started to notice that Ben started to cough up Silvia more then normal . all we can think is i hope he hasn't swollen something, which is so hard to tell if it stricture or swollen, so we had taken him down to the hospital and then he was admited, good news it wasn't a stricture it look like that he did swollen some foil , grrrrrr,
he now weigth is 9.8 kilo , and his feeds are now 55mils an hour and tolerating it really well well done Ben
**** it finally arrival after a month **
after a month long waiting Ben medic alert bracelet finally came, wow ! it will be easy to tell people about Ben condition and people can look at his bracelet to
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