1.07
you have started to move has you get comfable , but your heart rate had seem to drop it had drop when they had suction you the nurse had also given you a wash down , soon we b be able to hold you and bath, feed you , time will only tell ,
2.07
they have reducing your I.V medication down and your vendutior , your are slowy moving but your are still fast asleep
3.07
they endup pulling your vendoutor tube from the nurse , so the doctors wanted to see how you would have gone, your tempature had go up to 38 degree , it had seem that you had gotten an infection where the i.v was in your neck so their had taken out of your neck and had out in your head, ouch !
4.07
you still out of it fast asleep but you are aleart, you are too big for your bed , the nurse had given you a wash down ,i sat beside your bed reading a book , you are starting to have poos and wee normaly , which is great news, they have also started to lower you medication but your temp is 38 degree , , keep up the great work ben well done
5.07
your temp seem to be okay now, you have also been opening your eyes and smilimg , you have been up most of the day , so they have been giving a drug to help you sleep , cause you will nedd to heal from from your opeartion, you are also seem to breath on your slowy which is great news, you are inproving everyday, well doneyou are off the drug katamine but you are still on morphine is niw 24mls it was 48mls , i let you sleep good nigth , it has been aweek since you had your operation,
6.07 se your face again, keep up the wondergful work
8.07
i saw you and you where so happy that you cry and the venatuor had stop you from crying, it made me cry to not hear you cry , after 8 day i finally got to change your nappy and i was happy to do that tomorrow they are thinkg about taking the ventuotor and medication off cause you are doing so well, they are slowlying staring your gastromomy feeds ,
7.07
you now can breath on your own wothout any aid of a madcince,and the morphine is also take off to, guess what i finally got to hold you after a 9 days , and i am enjoyeing it so much, you are slowy getting your voice back we have slowly move from the bed in to a cot,we also put some clothes and starte to feed you throu your tube , i even got to see your whole face , i nearly cry
they have move from room 3 back to room 2 , you are soing so well and seem to take it well and giving you something for you to help you sleep, good night
9.07 ****what a day to turn BLUE****
their have started to boost your feed to 20ml and seem to take it okay, they wanted to see how would you go later on and they might boost to 40mls but you didnt tolerate you went blue and they gave you some oxgen , dad when out of the room cause he couldnt take it, it was too much for him, at 5:00pm you had trouble again so their had stop your feed until futrue notice , we also got you sucking on your dummy again, all i can said what aday
10.07
their have change your i.v lines cause your head swell you had another barmen test to see if there any leaks , after the test was done you starte to go BLUE , i never seen so many nurse and doctors run to your aid , after getting you better with oxgen we took you back to nnu , you had been the talk of the ward,so they had to stop your feed again until we cant figuer our what to do, until they put a nasla gastic tube and to start your feed once again until . they have put a special feed throu your i.v call (TDM) It help replace what you have miss with the milk,
you really scared us all , but you are now safe, thanks god
11.07
they had to put another i.v into your armas it wasnt working well (the tissue tend to block and it couse swell ,)i got to put you to sleep and after that you finally slept , i will give you a ash to-morrow, and also but a nasl gastic tube in to,we also enjoyed reading and laugthing to-gether
12.07
your aunty brooke and cousin emma came to see you , they had a appioment in the city tomorrow so they stay with me , so has also put another i.v in your foot and they had insert the nasla gastic tube in, after it was done you .your colour had turn a bit dusky so they had given you some oxgen, they where thinking about giving a cgap,nasal prong that oxgen travel throu,
13.07
they had put another i.v into your arm, but it had tissue and as cause the needle to stop working,so they had to take it out and tried again , you had been crying , i dont blame you not one bit, it was horriable they had been trying fro 30 mintes trying to get a vain, and here is my baby boy crying cause it hurting him, so i told them to stop it and try to slowy feed him , and thicken feed, befored hand his feeds wasnt thicken and cause him to go blue,so to start him feeds to 10mls and slowly take it up,
14,06
your feed are now from 10-20mls into your nasla gastic tubeand seem to tolerating really well,i had also given you a bath , keep up the great work ben well done
15,07
the nurse had given you bath to-day and a massard you really enjoyed it,your feed are now 23mls and you are taken it really well , we are proud ;
condutious feeds very hour,
16.07
your feeds are now 34mls still very hour and you seem to be taking it very well you have been very cheeky but ringing your bells and then you have gotten bore , i dont blame you , staying in that bed all day and every day ,apparently you had pull your gastromy tube out so they had to put another tube in, cheeky little man,
17.07*****4 moths old*****
you are still condutious feeds into the nasla gastic tube, you fell asleep on your chest and when i put you back in your bed you had wroken up,i broug you a colorful moblie for you cot, it had pretty toys and music too,and ligths up.
18.07 ****** FINALLY OUR 1ST TRIP OUTSIDE*******
i had given you a bath to-day and we change your bed and i was allow to take you out for the very frist time every out side, so i wanted to take you out for you frist taste of fresh air , and like i expected it you where a bit shock from the cold air,after that i had taken you to the starligth room ,you had fallen asleep in the pram, it felt so good to take you out,your weigth is now 5.6kg well done in keeping your weigth on
19.07
apparentaly you had one of them day where you had been unsettel so they call me to help you settled down , once i arrival and held you you seem to fall asleep, i also took you for another walk out of the room to help you more settle, it work you went to sleep , i put you back in your bed and i went back to get some shut eye has i been so tried and i will see you tomorrow, i do love you very much ben
20.07*****YOU HAVE MOVE UP IN THE WARD***
you had a bath to-day they have decide to move to to a diffenrt ward (4 main) which is on the fourth floor in the hospital,the reason they have move you cause you have gotten you big for them ,and you where well enought to be move to a diffent part of the hospital,you had also you 4 months injection befored moving to 4 main, what a big move , guess what i get to sleep beside you , they have fold up chairs there, i will soon give up the room and stay beside you, , i will feel like a mum again sleeping beside you.
21.07
gave you a wash down you didnt like it , dad was so proud to be pushing you he didnt allow me to push you you had really enjoyed it, i really loving these monet that we have
22.07
gave you a bath to-day we are both slowy getting used to the fourth floor and that we are going to a lot of places,dad came to visted us and put you in the pram,
has there are t,v(television) you have been drawn to the t.v , another who just love the t,v
23.07
your feed are still 35mls we had also change your dressing and you had been a bit unsettel so i took you for a walk to help you settle , claire and erick help push the pram and you fell asleep and i slep beside you
24.07
i ask the doctor what is the plan
*plan for home
*oral feeding
*gastromy dressing
we will havee to wait to see how he is later on
25.07*****BEN First TASTE OF A BOTTLE****
what a step of oral feeding your frist taste of a bottle , you seem to love it you couldnt wait to take it , you had also an hearing test and needed for you to sleep , the doctor will put a bigger tube in and soon start your feeds throu it, your friend johannah had her operation to-day , hope everything goes well,
26.07
they inserted another tube in , you had to go to therated to-day , i cry alittle cause you wnet to sleep with the gas, but i knew that you where fine, tomorrow they will start your feeding , throu the tube so hopfull it will go well, and well all know this , you have gone this far no backing down now,, you are so strong that you have achive so much in your little life ,they are talking about you going home with full gastromony feed
27.07 ***DADDY BIRTHDAY AND CLAIRE SCHOOL PLAY**
happy birthday dad , they have started our feed in the tube and you seem to tolerating it well, it milk is thicken and ,the gastromy feed are 3mls and the nasal tube is till 33ml their will up the gastromy feed and lower the nasal gastic tube feeds and soon you be on full gastromony feeds, and the nasla tube will be gone foreverbut your feeds are still every hour, claire had her frist glass school perform "mr henley garden" she was very cute, i didnt ask the doctor to see if i can take you with us, but if you have troulbe i will ahve to rush you strigth back and i didnt have any traing so i was safe just to leave you where you are,
28.07
your feed are 33mls every 4 hours , and the gastromy feed are now 10mls and the nasla tube is 23 not long now it will be gone , the doctor are so happy with your process we will ahve to wait until monday to find out more,
29.07
your nasal tube is now 17mls and the gasromy is 15 mils their are boosting 1ml every two hoursand you seem to be tolearting well , well done ben , keep up the great work
30.07
your feeds are now 25mls in the gastromony tube and the nasal gastic tube you are seen to tolerating it well,the nurse had taken to the front desk cause you wanted to be out of your cot,
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